"God give me the grace to trust you about my Parkinson's Disease"
Getting back into the conversations of daily life with Parkinson's Disease

How do I feel one week after being diagnosed with Parkinson's Disease?

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I wish I would have paid closer attention in my high school and community college biology classes back in the sixties.  As I move far along in my seventies I realize that my body is being challenged by old age.  

When my physical therapist evaluated me earlier this year, he asked me if I had ever been evaluated for Parkinson's Disease.  One of my M.D.s asked if I wanted a referral for a neurologist.  I'm glad I did.

I was diagnosed exactly a week ago.  Since then I've experienced various emotions.  My wife says, it's part of my new normal.  I feel like a deer in the headlights late at night on a Michigan highway.  I'm not sure I know which way to move or if I really want to.

So far, I've started the Parkinson's meds to restore dopamine to my neurons to help  all sorts of body functions.  I've developed a severe stoop when I walk most of the time.  I have trouble getting off soft chairs and couches and I've had a problem with severe constipation during the past few years.

My declining voice which has been reduced to a whisper most of the time has been a real problem.  Used to have a low voice, it's barely understandable.  I'm going to a speech therapist for special retraining of my voice.  It's LSVT Loud designed for Parkinson's patients.

Then there's the joint pain which seems to be getting better as I take the meds.  I never had hip pain until the past few months.  Tonight, it's gone, but I'm not sure for how long.

How do I feel about the future?  The apostle Paul said in Romans that with the Holy Spirit's help, we need to be "Joyful in hope and patient in affliction."  I want to be joyful in all this.  I won't be dancing down the street, but with God's help I can be joyful in hope.

 

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